Posted in acceptance

A year later….

It has been a year. One year ago, i was sitting on a couch crying my eyes out. It’s been one year since we received 7yo’s unofficial diagnosis, as well as her official one. One year ago we were sitting at a licensed therapist office as she was explaining that our child is barely holding it together. It was one year ago when she told us, that our then seven-year old has symptoms of clinical depression and OCD tendencies.

It wasn’t long after that first meeting that we received her official diagnosis of MTHFR. A genetic mutation that can cause depression and a laundry list of other things. I would love to tell you that this past year has been easy, but it hasn’t. I would love to tell you that we have arrived and all is right in the world and that would be equally true and untrue.

It has been a year of learning patience ( I am still working on this one), understanding and challenges that I never thought we would face as parents this early in the game. When your child has a physical illness, it’s  for the most part simple. you know what to do. They have a fever, you give Tylenol. Step throat? we got meds to fix that. But OCD and Depression, well… that’s not so easy.

For this entire year, we have visited the therapist every two weeks without fail. We have tried journaling, and other techniques. WE have made a lot of progress, but still ways to go. She has went from having a complete flat affect to showing facial expressions and excitement. She continues to open up to me a little more every day. Whether it be friendship troubles or a sibling spat, she is starting to feel comfortable talking to me about those things. She doesn’t always push me away when I try to comfort her now. Before, she would scream and push me away if I came near her when she was upset. It is awful to feel like there is nothing you can do to help your child.

My favorite progress so far is her ability to show her excitement. To have true facial expressions. It was completely heartbreaking to see my 7yo never show excitement.  Slightly less than a year ago, I began to write the following :

Depression on my seven-year old is riding the merry-go-round and never smiling. Imagine going round and round on that shiny horse and feeling nothing. When most kids are smiling and laughing, mine is flat. No expression, just hollow inside.

Depression in a seven-year old is never wanting to play outside.  It is choosing to isolate yourself, even in your own family. It is sitting in the hallway and reading versus playing in the living room with your siblings.

This year, I pray for continued progress. For my daughter to better understand feelings and emotions. I pray more than anything for my daughter to tell me she loves me. Something she has said only a handful of times in her life. She simply does not understand emotions and seems unsure of what she feels.

This road will never be easy. It will be hard, it will be painful. It is parenting.

Trust in my unfailing love .. I am in control – Jesus Always

 

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Author:

I am a wife of ten years, mom of three, Nurse and student! My household is quite chaotic and busy. With a six year old going on sixteen. we shall call her "Sassy", a four year old, who is stubborn as a mule, she shall be called " mini me", and a one year old, we will call "Buddy". Our girls do Ballet, and our son, well he is all boy! Very curious and always getting in to something. When we found out we were having a boy i laughed and said " god must have known we needed a little less diva in our life," Ha, little boys are quite the handful! I love my kids with all of my heart, and i love my job too! As a nurse leader i get to see many sides to healthcare and help encourage and guide new nurses. I love taking care of patients and being able to have grown up talk and then come home to my babies. The house is usually chaotic with lots of tantrums, and messes, but i wouldn't change it for a bit. On the rare occasion that i am able to have some spare time to myself, i like to read, bake and decorate cakes, and take pictures of my kiddos. Time to myself is rare so i decided to start this blog to have a creative outlet and connect with other working moms, who might be going through the same situations as myself. I hope you enjoy my thoughts and stories as a mom, student, wife and Nurse! These stories will range from Diapers and tutus to meetings and boardrooms! and everything that falls in between. Enjoy and thanks for visiting my site.

20 thoughts on “A year later….

  1. I’m glad you have been able to see improvement and I pray this year will bring many more. Take care of yourself too. My son has diabetes and my husband is bipolar so I know how easy it is to forget about yourself.

    1. Thank you. I needed to read that tonight. My middle child has been struggling with school and lately I have been thinking “what about my needs” and then feel guilty for even thinking it. It’s so hard…

  2. Hugs and prayers . . . I know how hard it is to watch our children struggle, don’t forget to take care of YOU while you are taking care of her. I forgot a few times and peices of the world began to crumble away, we mended it together though. You have a diagnosis, you are doing everything you can do, sometimes it’s two steps forward, one step back, but some days there might be an extra step in the right direction 🙂 If you ever need a shoulder . . .

    1. Thank you! It has been tough and all three of my kids have the mthfr mutation, so we are just in waiting mode to see if it will affect the other two the same way it affects her it has been exhausting and time for myself has been rare lately..

  3. This brought me to tears! So sorry you are navigating this extremely difficult road with your little one. But I am overjoyed to hear the hope in your words and so progress in the past year. He is so mighty and in control. What a blessing! Will add you to my prayer list as you continue to fight this fight with your girl.

  4. Small progress is a progress and it’s heartwarming to know that things are improving for you April. It’s a lot to take and I can only imagine the emotional ups and downs you get and your strength for you, your child and family is priceless. Thinking of you. x.

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